| Excerpt
from Chapter 1
Because the origin of the condition known as endometriosis
is not clear,
it is hard to say if I inherited it or not. But no matter how it
came about, I had it. I love being able to put that sentence in
the past tense! "I had it." What a beautiful phrase! And
what's even more beautiful is that I survived it and beat it-- and
so can you.
This type of joy and optimism did not always surround me; as a
matter of fact the majority of my life was overshadowed by pessimism.
I was afraid that I would never know what was wrong with me and
that I would have to suffer for the rest of my life.
In a very real sense I was a prisoner-- in a dungeon so deep and
well hidden that no one could even find me, let alone help me escape.
It was a psychological battle just as much as a physical battle.
So often I felt that I was the only player on my team and I had
to play every position well enough not to be taken out of the game.
The disease was so alien to doctors. Diagnosis was so difficult
that sometimes I felt that the doctors and I were visitors in a
foreign land, trying to learn the language of the people and not
getting anywhere. I felt so frustrated and lonely at times that
it almost seemed I could disappear from the face of the earth and
no one would notice. I also had moments of utter confusion as I
struggled to understand why I had to defend myself and try to prove
that I was indeed ill.
My earliest memory of the intense pain that accompanies this condition
dates back to when I was around 13 or 14. I remember waking up in
the middle of the night to go to the bathroom. As I stood up to
go back to bed, the entire room went black and I suddenly felt disconnected
from my body -- the way you do when youre given laughing gas
at the dentists office. This sensation was followed by chills
and profuse sweating.
|