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Because
the origin of the condition known
as endometriosis is not clear, it
is hard to say if I inherited it or
not. But no matter how it came about,
I had it. I love being able to put
that sentence in the past tense! "I
had it." What a beautiful phrase!
And what's even more beautiful is
that I survived it and beat it-- and
so can you.
This type of joy and optimism
did not always surround me; as a matter
of fact the majority of my life was
overshadowed by pessimism. I was afraid
that I would never know what was wrong
with me and that I would have to suffer
for the rest of my life.
In a very real sense
I was a prisoner-- in a dungeon so
deep and well hidden that no one could
even find me, let alone help me escape.
It was a psychological battle just
as much as a physical battle. So often
I felt that I was the only player
on my team and I had to play every
position well enough not to be taken
out of the game.
The disease was so alien
to doctors. Diagnosis was so difficult
that sometimes I felt that the doctors
and I were visitors in a foreign land,
trying to learn the language of the
people and not getting anywhere. I
felt so frustrated and lonely at times
that it almost seemed I could disappear
from the face of the earth and no
one would notice. I also had moments
of utter confusion as I struggled
to understand why I had to defend
myself and try to prove that I was
indeed ill.
My earliest memory of
the intense pain that accompanies
this condition dates back to when
I was around 13 or 14. I remember
waking up in the middle of the night
to go to the bathroom. As I finished
what I went there to do and stood
up to go back to bed, the entire room
went black and I suddenly felt disconnected
from my body -- the way you do when
you're given laughing gas at the dentist's
office. This sensation was followed
by chills and profuse sweating.
Suddenly, a blast of
pain drove my legs out from under
me. It felt like a 350 pound NFL lineman
had punched me in the abdomen with
all his might. I fell to the floor
and curled into a fetal position,
gasping for breath; the pain was that
intense. I have no idea how long I
laid there, but eventually the pain
subsided and I was able to get to
my feet and return to my bedroom.
Curiously, once the pain
left, it was as though it had never
occurred. By the next morning it all
seemed like just a bad dream; in fact,
I almost wondered if it had even happened.
I felt fine. And it would be quite
a while before any more such "episodes"
occurredÖ
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